This account is pending registration confirmation. Please click on the link within the confirmation email previously sent you to complete registration.
Need a new registration confirmation email? Click here
TheStreet Open House

Patient Advocates And Social Workers Will Be Trained On Intricacies Of Affordable Care Act With CSL Behring Grant

KING OF PRUSSIA, Pa., March 24, 2014 /PRNewswire/ -- Navigating the complexities of the Affordable Healthcare Act (ACA) can be challenging, particularly where patients with chronic medical disorders such as hemophilia and von Willebrand disease are concerned. CSL Behring is awarding a Local Empowerment for Advocacy Development (LEAD) grant to help bleeding disorder patients develop a clearer understanding of ACA and potential areas of concern.

CSL Behring logo.

The grant will enable Hemophilia of Indiana to help close the information gap by providing training for National Hemophilia Foundation (NHF) chapter staff and hemophilia treatment center (HTC) social workers in five states – Indiana, Michigan, Wisconsin, Illinois and Missouri. The training will address the following areas:

  • Issues related to the implementation of the ACA as they pertain to people with bleeding disorders.
  • How to assist those with specific chronic health conditions and help to ensure their needs are fully met under the ACA's 10 "essential health benefits."
  • How to examine whether a person's insurance coverage, particularly coverage provided through new exchanges, provides a sufficient array of providers (including HTCs) and defined standards that meet those that patients had obtained prior to the passage of ACA.

After completing the training, it is expected that HTC and NHF staff will have greater understanding of specific issues around ACA implementation that impact the quality of healthcare insurance coverage of people with bleeding disorders. Staff will also be better equipped to monitor ACA implementation to identify areas of specific concern for people with bleeding disorders.

In addition, HTC social workers will be more knowledgeable about the ACA and will be able to answer consumers' questions in an accurate and timely manner. Lastly, the participants will be trained to develop action steps and an advocacy plan for consumers to guide their efforts to secure desired insurance coverage, particularly with regard to plans that provide the best coverage for clotting factor. The training will be held in August in Indianapolis.

Dennis Jackman, CSL Behring's senior vice president for global healthcare policy and external affairs, said selecting the best coverage for clotting factor can be particularly challenging. "The implementation of ACA could pose a substantial shift in how people are insured. Individuals in the states will have many different plans, some that are part of a state exchange, others that are part of a federal exchange, and still more plans that are a combination of the two, depending on the state. Our goal is to help assure that patients and their caregivers have as much information as possible to assist them in making decisions that are in their best interests."

Scott Ehnes, executive director of Hemophilia of Indiana, said the grant from CSL Behring is essential to the success of the project. "As the details of this complex healthcare insurance reform initiative become clear, the LEAD grant will enable us to conduct training that addresses areas of concern that are identified as the ACA is implemented, such as issues around the healthcare exchanges."

CSL Behring also awarded a LEAD grant to facilitate the formation of the Texas Bleeding Disorders Coalition, comprised of three existing patient groups: Texas Central Hemophilia Association, the Lone Star Chapter of NHF, and the El Paso Chapter of NHF. Jackman emphasized the importance of speaking with one voice on behalf of bleeding disorder patients in Texas. "We are happy to support this effort, which will hopefully enable them to expand on their already successful advocacy efforts."

A third LEAD grant is being awarded to the Louisiana Hemophilia Foundation to establish a dynamic advocacy program that enables the members of Louisiana's bleeding disorders community to take a more active role in advocating for access to care. 

CSL Behring has awarded 51 LEAD grants to patient advocacy organizations totaling more than $630,000 since the program was established in 2008. Proposals are being accepted for the next grant cycle. The deadline for submitting a proposal is April 30, 2014.

About CSL Behring

CSL Behring is a leader in the plasma protein therapeutics industry. Committed to saving lives and improving the quality of life for people with rare and serious diseases, the company manufactures and markets a range of plasma-derived and recombinant therapies worldwide.

CSL Behring therapies are used around the world to treat coagulation disorders including hemophilia and von Willebrand disease, primary immune deficiencies, hereditary angioedema and inherited respiratory disease, and neurological disorders in certain markets. The company's products are also used in cardiac surgery, organ transplantation, burn treatment and to prevent hemolytic diseases in the newborn.

1 of 2

Select the service that is right for you!

COMPARE ALL SERVICES
Action Alerts PLUS
Try it NOW

Jim Cramer and Stephanie Link actively manage a real portfolio and reveal their money management tactics while giving advanced notice before every trade.

Product Features:
  • $2.5+ million portfolio
  • Large-cap and dividend focus
  • Intraday trade alerts from Cramer
  • Weekly roundups
TheStreet Quant Ratings
Try it NOW
Only $49.95/yr

Access the tool that DOMINATES the Russell 2000 and the S&P 500.

Product Features:
  • Buy, hold, or sell recommendations for over 4,300 stocks
  • Unlimited research reports on your favorite stocks
  • A custom stock screener
  • Upgrade/downgrade alerts
Stocks Under $10
Try it NOW

David Peltier, uncovers low dollar stocks with extraordinary upside potential that are flying under Wall Street's radar.

Product Features:
  • Model portfolio
  • Stocks trading below $10
  • Intraday trade alerts
  • Weekly roundups
Dividend Stock Advisor
Try it NOW

Jim Cramer's protege, David Peltier, identifies the best of breed dividend stocks that will pay a reliable AND significant income stream.

Product Features:
  • Diversified model portfolio of dividend stocks
  • Alerts when market news affect the portfolio
  • Bi-weekly updates with exact steps to take - BUY, HOLD, SELL
Real Money Pro
Try it NOW

All of Real Money, plus 15 more of Wall Street's sharpest minds delivering actionable trading ideas, a comprehensive look at the market, and fundamental and technical analysis.

Product Features:
  • Real Money + Doug Kass Plus 15 more Wall Street Pros
  • Intraday commentary & news
  • Ultra-actionable trading ideas
Options Profits
Try it NOW

Our options trading pros provide daily market commentary and over 100 monthly option trading ideas and strategies to help you become a well-seasoned trader.

Product Features:
  • 100+ monthly options trading ideas
  • Actionable options commentary & news
  • Real-time trading community
  • Options TV
To begin commenting right away, you can log in below using your Disqus, Facebook, Twitter, OpenID or Yahoo login credentials. Alternatively, you can post a comment as a "guest" just by entering an email address. Your use of the commenting tool is subject to multiple terms of service/use and privacy policies - see here for more details.
Submit an article to us!
DOW 17,279.74 +13.75 0.08%
S&P 500 2,010.40 -0.96 -0.05%
NASDAQ 4,579.7890 -13.6380 -0.30%

Brokerage Partners

Rates from Bankrate.com

  • Mortgage
  • Credit Cards
  • Auto

Free Newsletters from TheStreet

My Subscriptions:

After the Bell

Before the Bell

Booyah! Newsletter

Midday Bell

TheStreet Top 10 Stories

Winners & Losers

Register for Newsletters
Top Rated Stocks Top Rated Funds Top Rated ETFs