National organization will advocate for the one million Canadians who live with psoriasis
Oct. 28, 2013
/CNW/ - The
Canadian Psoriasis Network
(CPN), a Canadian-based patient network for those living with psoriasis and psoriatic arthritis will launch on World Psoriasis Day on
Psoriasis is a chronic inflammatory, genetic disease of the immune system that appears most visibly on the skin, causing it to crack, itch and bleed. It also greatly elevates the risk of cardio vascular disease, diabetes, depression and obesity. It is the most common autoimmune disease in the country, affecting as many as 1 million Canadians. Up to 30 percent of people with psoriasis develop psoriatic arthritis, which causes pain and swelling of the joints. If left untreated, psoriatic arthritis can cause irreversible joint damage.
The Canadian Psoriasis Network has become a voice and source of information for psoriasis sufferers.
, who has lived with psoriasis for 25 years, founded the organization.
"I created the Canadian Psoriasis Network to speak up for people living with this disease," says
, Founder, Canadian Psoriasis Network. "As someone who has lived with and suffered from psoriasis for many years, I know that it's crucial to be informed about the disease. There are successful treatment options available and there are brighter days ahead. I don't want anyone living with this disease to feel as hopeless as I did for many years."
The CPN has developed a Bill of Rights and Responsibilities to help psoriasis patients get the care they need by encouraging doctors to take psoriatic disease more seriously and to keep informed about treatment options. The bill emphasizes the rights for psoriatic patients to receive medical care from a healthcare provider who understands that psoriasis and psoriatic arthritis are serious autoimmune diseases which are often undertreated or ignored.