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Genzyme, a Sanofi company (EURONEXT: SAN and NYSE: SNY), today announced the recipients of the 2013 Genzyme Patient Advocacy Leadership (PAL) Awards. This global grant program supports outreach programs by non-profit organizations that work on behalf of patients living with lysosomal storage disorders (LSDs), a group of rare, inherited disorders that cause progressive and debilitating health problems.
In its third year, the Genzyme PAL Award program encourages new and innovative approaches to improve disease awareness, patient care support, and education. More than 40 patient organizations representing 25 countries submitted proposals. Proposals were received from the Batten, Gaucher, MPS, Fabry, Pompe, and Niemann-Pick disease communities as well as several other rare disease patient organizations. Eight recipients were chosen and collectively received over $100,000 from Genzyme, to support programs in Chile, China, Denmark, Hungary, the Philippines, the United Kingdom and the United States. The Genzyme PAL Award program supplements Genzyme’s existing grants program and does not replace the contributions made locally each year to support advocacy groups.
“Over the past two years we have been inspired by the depth and reach of the PAL awards recipients and their efforts to strengthen the rare disease patient community,” said Jamie Ring, Genzyme’s Vice President of Global Patient Advocacy and Humanitarian Programs for Rare Diseases. “This year we’re excited to recognize many organizations around the world that are working towards expanding awareness and education, improving access to treatment for patients, and empowering the next generation of physicians.”
An external review committee was again assembled to review applications and select the PAL Award recipients. The committee members included: Patricia Collins, former Chief Development Officer at Clinton Health Access Initiative; Jean F. Campbell, Rare Disease Advocacy Consultant; Erik Tambuyzer, President and Founder, ABConsult; Kimberly Goodrich, CFRE, The Multiple Sclerosis Association of America, Senior Director of Development; and Cara Hesse, Associate Director of Global Patient Advocacy at Genzyme. More information on the Genzyme PAL Awards can be found at:
Genzyme is pleased to announce the 2013 PAL Award grant recipients below: