These stories can be viewed here: www.alsa.org/awareness-viewstories.
The story capture feature enables The Association's existing supporters to take action, and creates content to further engage individuals who want to know more about the disease. Each story has a unique URL, and the number of social media likes or shares are visible on each story page and on an aggregate page, where multiple stories can be viewed.
"It's through these personal stories that people not as familiar with the disease can learn more about it by seeing what others are going through," said Gilbert.
The Association's chapters nationwide will be actively promoting the stories within their service areas. The four stories with the most social media likes or shares will each win for their local chapters one of four Quantum Q6 Edge chairs (
each) donated by Pride Mobility. Chapters will add these chairs to their loan closets, which offer equipment and other devices to people with the disease at no cost.
Building the number online advocates is also an objective of this year's campaign and complements the offline advocacy activities of The Association in May. From
, The Association will be hosting its annual
National ALS Advocacy Day and Public Policy Conference
, which brings together more than a thousand people with ALS, family members and other concerned individuals to advocate in person for policies specifically designed to accelerate the develop of treatments for the disease.
"We hope to recruit even more advocates during May this year," said Gilbert, "because we know that many passionate individuals can create one collective voice when advocating lawmakers on important issues facing people with ALS."
For more information on ALS Awareness Month, please visit
About The ALS Association
The ALS Association is the only national non-profit organization fighting
's Disease on every front. By leading the way in global research, providing assistance for people with ALS through a nationwide network of chapters, coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships, The Association builds hope and enhances quality of life while aggressively searching for new treatments and a cure. For more information about The ALS Association, visit our website at