This Day On The Street
Continue to site right-arrow
This account is pending registration confirmation. Please click on the link within the confirmation email previously sent you to complete registration.
Need a new registration confirmation email? Click here
Stocks Under $10 with 50-100% upside potential - 14 days FREE!

NORD To Honor Rare Disease Heroes At 30th Anniversary Celebration

Momentous Event to Highlight Historic Past, Promising Future

WASHINGTON, April 5, 2013 /PRNewswire-USNewswire/ -- Honoring heroes of the past and innovators of the future, the National Organization for Rare Disorders (NORD) will host a 30 th Anniversary Celebration for the entire rare disease community on Tuesday, May 14 at the Mellon Auditorium in Washington, DC.  This momentous occasion will provide an exciting opportunity to celebrate the history and lasting impact of both the Orphan Drug Act and NORD.

"Since 1983, the rare disease community, with NORD as a unifying force, has built a solid foundation of accomplishment," said NORD President and CEO Peter L. Saltonstall.  "We look forward to honoring heroes from all sectors of the community.  And we also anticipate an evening that will inspire future innovation as we hear first-hand from patients and families living with rare diseases."

The Orphan Drug Act of 1983 launched a new era in the development of therapies for people with rare diseases.  Established by patient advocates at the time the law was enacted, NORD has been at the heart of rare disease activity over the years, working with partners in patient organizations, government and industry to bring meaningful advancements for patients.

Honorees for the NORD 30 th Anniversary Celebration will be:

For Leadership in Public Policy

These awards honor public officials for leadership that has improved the lives of millions of Americans living with rare diseases.

  • William Corr, Deputy Secretary, U.S. Department of Health and Human Services
  • The Honorable Nancy Kassebaum, U.S. Senate, retired
  • The Honorable Henry Waxman, U.S. House of Representatives

For Vision and Pioneering Guidance

These awards honor pioneers in the patient community, government and industry for years of service to rare disease patients and their families.

  • Stephen C. Groft, PharmD
  • Marlene Haffner, MD, MPH
  • Lars Uno Larsson
  • Abbey S. Meyers
  • Jess G. Thoene, MD

For Innovative Orphan Products Approved in 2012

These awards honor companies that brought important and innovative treatments to market during the previous year.

  • Aegerion Pharmaceuticals, Inc.
  • NPS Pharmaceuticals, Inc.
  • Onyx Pharmaceuticals, Inc.
  • Sigma-Tau Pharmaceuticals, Inc.


Registration and sponsorship information is available on the NORD website (   

SOURCE National Organization for Rare Disorders (NORD)

Copyright 2011 PR Newswire. All rights reserved. This material may not be published, broadcast, rewritten or redistributed.

Select the service that is right for you!

Action Alerts PLUS
Try it NOW

Jim Cramer and Stephanie Link actively manage a real portfolio and reveal their money management tactics while giving advanced notice before every trade.

Product Features:
  • $2.5+ million portfolio
  • Large-cap and dividend focus
  • Intraday trade alerts from Cramer
  • Weekly roundups
TheStreet Quant Ratings
Try it NOW
Only $49.95/yr

Access the tool that DOMINATES the Russell 2000 and the S&P 500.

Product Features:
  • Buy, hold, or sell recommendations for over 4,300 stocks
  • Unlimited research reports on your favorite stocks
  • A custom stock screener
  • Upgrade/downgrade alerts
Stocks Under $10
Try it NOW

David Peltier, uncovers low dollar stocks with extraordinary upside potential that are flying under Wall Street's radar.

Product Features:
  • Model portfolio
  • Stocks trading below $10
  • Intraday trade alerts
  • Weekly roundups
Dividend Stock Advisor
Try it NOW

Jim Cramer's protege, David Peltier, identifies the best of breed dividend stocks that will pay a reliable AND significant income stream.

Product Features:
  • Diversified model portfolio of dividend stocks
  • Alerts when market news affect the portfolio
  • Bi-weekly updates with exact steps to take - BUY, HOLD, SELL
Real Money Pro
Try it NOW

All of Real Money, plus 15 more of Wall Street's sharpest minds delivering actionable trading ideas, a comprehensive look at the market, and fundamental and technical analysis.

Product Features:
  • Real Money + Doug Kass Plus 15 more Wall Street Pros
  • Intraday commentary & news
  • Ultra-actionable trading ideas
Options Profits
Try it NOW

Our options trading pros provide daily market commentary and over 100 monthly option trading ideas and strategies to help you become a well-seasoned trader.

Product Features:
  • 100+ monthly options trading ideas
  • Actionable options commentary & news
  • Real-time trading community
  • Options TV
To begin commenting right away, you can log in below using your Disqus, Facebook, Twitter, OpenID or Yahoo login credentials. Alternatively, you can post a comment as a "guest" just by entering an email address. Your use of the commenting tool is subject to multiple terms of service/use and privacy policies - see here for more details.
Submit an article to us!


DOW 17,804.80 +26.65 0.15%
S&P 500 2,070.65 +9.42 0.46%
NASDAQ 4,765.38 +16.9840 0.36%

Brokerage Partners

Rates from

  • Mortgage
  • Credit Cards
  • Auto

Free Newsletters from TheStreet

My Subscriptions:

After the Bell

Before the Bell

Booyah! Newsletter

Midday Bell

TheStreet Top 10 Stories

Winners & Losers

Register for Newsletters
Top Rated Stocks Top Rated Funds Top Rated ETFs