Momentous Event to Highlight Historic Past, Promising Future
April 5, 2013
/PRNewswire-USNewswire/ -- Honoring heroes of the past and innovators of the future, the National Organization for Rare Disorders (NORD) will host a 30
Anniversary Celebration for the entire rare disease community on
Tuesday, May 14
at the Mellon Auditorium in
, DC. This momentous occasion will provide an exciting opportunity to celebrate the history and lasting impact of both the
Orphan Drug Act
"Since 1983, the rare disease community, with NORD as a unifying force, has built a solid foundation of accomplishment," said NORD President and CEO
Peter L. Saltonstall
. "We look forward to honoring heroes from all sectors of the community. And we also anticipate an evening that will inspire future innovation as we hear first-hand from patients and families living with rare diseases."
Orphan Drug Act
of 1983 launched a new era in the development of therapies for people with rare diseases. Established by patient advocates at the time the law was enacted, NORD has been at the heart of rare disease activity over the years, working with partners in patient organizations, government and industry to bring meaningful advancements for patients.
Honorees for the NORD 30
Anniversary Celebration will be:
For Leadership in Public Policy
These awards honor public officials for leadership that has improved the lives of millions of Americans living with rare diseases.
For Vision and Pioneering Guidance
These awards honor pioneers in the patient community, government and industry for years of service to rare disease patients and their families.
- William Corr, Deputy Secretary, U.S. Department of Health and Human Services
- The Honorable Nancy Kassebaum, U.S. Senate, retired
- The Honorable Henry Waxman, U.S. House of Representatives
For Innovative Orphan Products Approved in 2012
These awards honor companies that brought important and innovative treatments to market during the previous year.
- Stephen C. Groft, PharmD
- Marlene Haffner, MD, MPH
- Lars Uno Larsson
- Abbey S. Meyers
- Jess G. Thoene, MD
REGISTRATION AND SPONSORSHIP
Registration and sponsorship information
- Aegerion Pharmaceuticals, Inc.
- NPS Pharmaceuticals, Inc.
- Onyx Pharmaceuticals, Inc.
- Sigma-Tau Pharmaceuticals, Inc.
is available on the NORD website (
SOURCE National Organization for Rare Disorders (NORD)