The month culminates with IDF joining international patient organizations to mark World PI Week ( April 22-29, 2013), a global campaign, which aims to raise awareness and improve diagnosis and treatment of primary immunodeficiency diseases.
Is It Just An Infection?One of the key message points IDF works to communicate during National Primary Immunodeficiency Awareness Month is the importance of evaluating infections to determine if it is something out of the ordinary, a potential sign of a primary immunodeficiency disease.
People should be suspicious of an infection if it is:
Severe – requires hospitalization or intravenous antibiotics Persistent – won't completely clear up or clears slowly Unusual – caused by an uncommon organism Recurrent – keeps coming back Runs in the Family – others in your family have a similar susceptibility to infectionIf people have infections that match any of these descriptions, they are advised to consult their physician to check for the possibility of a primary immunodeficiency disease. People with primary immunodeficiencies are more susceptible to infections and health problems that lead to serious and debilitating diseases. Patients can live long, healthy, normal lives, but early diagnosis and proper medical care are an essential first step. About The Immune Deficiency Foundation The Immune Deficiency Foundation, founded in 1980, is the national non-profit patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research. There are approximately 250,000 people who have been diagnosed with a primary immunodeficiency disease in the U.S. These individuals often find it difficult to receive specialized healthcare, proper diagnosis and treatment. Individuals affected by primary immunodeficiency diseases also experience difficulties financing their healthcare, finding educational materials on the disease and locating others with whom to share their experiences. IDF helps individuals overcome these difficulties so they can live healthy and productive lives. The constant presence of IDF assures patients, their families and their medical caretakers that there is a place to turn for help. To learn more about IDF, visit www.primaryimmune.org or call 800.296.4433.