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Shire Supports Rare Disease Day 2013

Shire's Global Rare Disease Day Initiatives

As part of its external initiatives, Shire is supporting the R.A.R.E Project, a leading non-profit rare disease advocacy organization, in their Global Genes Project "Wear That You Care " denim campaign in which denim jeans are used to raise awareness of rare genetic disorders. The company distributed over 3,500 blue ribbons to employees at various corporate locations worldwide.

Shire is also supporting a variety of other initiatives surrounding Rare Disease Day, including: EURORDIS "Black Pearl" Gala Dinner on February 26 th in Brussels; MassBio's Rare Disease Day celebration at the State House in Boston on February 28 th; the "Troisième Journée des Maladies Rares en Suisse" in Zürich, Switzerland on February 23 rd; the Royal Free Hospital in London in the development of films to give insights into the patient journey for rare conditions, Fabry disease and Gaucher disease; a special "Supplement on Rare Diseases" in the UK's Independent newspaper; The National Action Day for Rare Diseases organised by the University of Cologne on March 2 nd; the launch of "Rare Voices Australia" (RVA) in Canberra in March 2013; and the "Awareness Campaign on Rare Diseases", called for by the Federation on Rare Diseases of Argentina (FADEPOF).

NOTES TO EDITORS

Shire enables people with life-altering conditions to lead better lives.

Through our deep understanding of patients' needs, we develop and provide healthcare in the areas of:

  • Behavioral Health and Gastro Intestinal conditions
  • Rare Diseases
  • Regenerative Medicine

as well as other symptomatic conditions treated by specialist physicians.

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