Genzyme, a Sanofi company (EURONEXT: SAN and NYSE: SNY), today announced its support of International Rare Disease Day with a series of initiatives meant to call attention to rare diseases as an important public health issue and to improve rare disease education, research, and treatment. Observed annually on the last day of February, Rare Disease Day is an international awareness campaign organized by the patient organization EURORDIS and supported by hundreds of other patient organizations around the world.
February 28, 2013 marks the sixth International Rare Disease Day. This year’s theme, “Rare Disorders without Borders,” emphasizes that international cooperation is essential for fighting diseases that affect only a few people in each country and for which expertise is scarce and scattered. In celebration of this theme, Genzyme is pleased to launch a new website highlighting collaborative activities taking place globally to recognize Rare Disease Day: http://raredisease.genzyme.com.
Genzyme sites around the world are partnering with local patient organizations on a variety of Rare Disease Day activities meant to educate policymakers, medical professionals, patients and caregivers, and the general public and empower them to advocate for those affected by rare diseases. These initiatives include:
- Rare Disease Day running/cycling relay connecting Genzyme sites in Naarden, the Netherlands; Waterford, Ireland; and four Massachusetts locations
- Launch of “Facing Fabry Together,” a film that tells the stories of families from France, Germany, Brazil, and Canada that are each living with Fabry disease. Visit www.facingfabrytogether.com to watch the film online.
- Family forum held in Singapore for rare disease patients and their families, friends, and caregivers
- Comic book art contest meant to share real-life stories of people living with Mucopolysaccharidoses (MPS) in Hong Kong
- Rare disease symposium held in Russia for policymakers and the public
- Documentary film project about individuals with rare diseases filmed in Taiwan
- “Roads & rails” public awareness campaign, displaying rare disease information on highly trafficked roads and train stations in France
- Spain’s “Esperanza” (hope) product line, including mugs, bracelets, key chains, magnets, and other materials designed to allow people to express solidarity with those living with rare diseases
- Chile’s event to empower children with rare diseases to paint self-portraits and share their paintings with policymakers
- Art exhibition in Italy featuring paintings, photos, videos, and theatrical performances created by rare disease patients and advocates
- 20 events in Brazil, including a walk in Sao Paulo, a bike ride in Recife City, and the launch of an educational illustrated book on Gaucher disease
In addition, Genzyme is pleased to announce the launch of the third annual Patient Advocacy Leadership Awards (PAL Awards), a global grant program supporting non-profit patient organizations that work on behalf of individuals living with lysosomal storage disorders (LSDs), a group of rare, inherited disorders that cause progressive and debilitating health problems. Grants are awarded through a competitive process to organizations that seek funding for innovative programs and projects that improve disease awareness, patient care and support, and education. In 2012, more than 50 patient organizations representing 27 countries submitted proposals, and nine winners chosen by an external review committee received a total of $100,000 from Genzyme.
Select the service that is right for you!COMPARE ALL SERVICES
Jim Cramer and Stephanie Link actively manage a real portfolio and reveal their money management tactics while giving advanced notice before every trade.
- $2.5+ million portfolio
- Large-cap and dividend focus
- Intraday trade alerts from Cramer
- Weekly roundups
Access the tool that DOMINATES the Russell 2000 and the S&P 500.
- Buy, hold, or sell recommendations for over 4,300 stocks
- Unlimited research reports on your favorite stocks
- A custom stock screener
- Upgrade/downgrade alerts
Jim Cramer's protege, David Peltier, identifies the best of breed dividend stocks that will pay a reliable AND significant income stream.
- Diversified model portfolio of dividend stocks
- Alerts when market news affect the portfolio
- Bi-weekly updates with exact steps to take - BUY, HOLD, SELL
All of Real Money, plus 15 more of Wall Street's sharpest minds delivering actionable trading ideas, a comprehensive look at the market, and fundamental and technical analysis.
- Real Money + Doug Kass Plus 15 more Wall Street Pros
- Intraday commentary & news
- Ultra-actionable trading ideas
Our options trading pros provide daily market commentary and over 100 monthly option trading ideas and strategies to help you become a well-seasoned trader.
- 100+ monthly options trading ideas
- Actionable options commentary & news
- Real-time trading community
- Options TV