This account is pending registration confirmation. Please click on the link within the confirmation email previously sent you to complete registration.
Need a new registration confirmation email? Click here
Stocks Under $10 with 50-100% upside potential - 14 days FREE!

Genzyme Recognizes International Rare Disease Day With Global Awareness Programs And Launch Of Third Annual Patient Advocacy Leadership (PAL) Awards

Genzyme, a Sanofi company (EURONEXT: SAN and NYSE: SNY), today announced its support of International Rare Disease Day with a series of initiatives meant to call attention to rare diseases as an important public health issue and to improve rare disease education, research, and treatment. Observed annually on the last day of February, Rare Disease Day is an international awareness campaign organized by the patient organization EURORDIS and supported by hundreds of other patient organizations around the world.

February 28, 2013 marks the sixth International Rare Disease Day. This year’s theme, “Rare Disorders without Borders,” emphasizes that international cooperation is essential for fighting diseases that affect only a few people in each country and for which expertise is scarce and scattered. In celebration of this theme, Genzyme is pleased to launch a new website highlighting collaborative activities taking place globally to recognize Rare Disease Day: http://raredisease.genzyme.com.

Genzyme sites around the world are partnering with local patient organizations on a variety of Rare Disease Day activities meant to educate policymakers, medical professionals, patients and caregivers, and the general public and empower them to advocate for those affected by rare diseases. These initiatives include:

  • Rare Disease Day running/cycling relay connecting Genzyme sites in Naarden, the Netherlands; Waterford, Ireland; and four Massachusetts locations
  • Launch of “Facing Fabry Together,” a film that tells the stories of families from France, Germany, Brazil, and Canada that are each living with Fabry disease. Visit www.facingfabrytogether.com to watch the film online.
  • Family forum held in Singapore for rare disease patients and their families, friends, and caregivers
  • Comic book art contest meant to share real-life stories of people living with Mucopolysaccharidoses (MPS) in Hong Kong
  • Rare disease symposium held in Russia for policymakers and the public
  • Documentary film project about individuals with rare diseases filmed in Taiwan
  • “Roads & rails” public awareness campaign, displaying rare disease information on highly trafficked roads and train stations in France
  • Spain’s “Esperanza” (hope) product line, including mugs, bracelets, key chains, magnets, and other materials designed to allow people to express solidarity with those living with rare diseases
  • Chile’s event to empower children with rare diseases to paint self-portraits and share their paintings with policymakers
  • Art exhibition in Italy featuring paintings, photos, videos, and theatrical performances created by rare disease patients and advocates
  • 20 events in Brazil, including a walk in Sao Paulo, a bike ride in Recife City, and the launch of an educational illustrated book on Gaucher disease

In addition, Genzyme is pleased to announce the launch of the third annual Patient Advocacy Leadership Awards (PAL Awards), a global grant program supporting non-profit patient organizations that work on behalf of individuals living with lysosomal storage disorders (LSDs), a group of rare, inherited disorders that cause progressive and debilitating health problems. Grants are awarded through a competitive process to organizations that seek funding for innovative programs and projects that improve disease awareness, patient care and support, and education. In 2012, more than 50 patient organizations representing 27 countries submitted proposals, and nine winners chosen by an external review committee received a total of $100,000 from Genzyme.

1 of 3

Select the service that is right for you!

COMPARE ALL SERVICES
Action Alerts PLUS
Try it NOW

Jim Cramer and Stephanie Link actively manage a real portfolio and reveal their money management tactics while giving advanced notice before every trade.

Product Features:
  • $2.5+ million portfolio
  • Large-cap and dividend focus
  • Intraday trade alerts from Cramer
  • Weekly roundups
TheStreet Quant Ratings
Try it NOW
Only $49.95/yr

Access the tool that DOMINATES the Russell 2000 and the S&P 500.

Product Features:
  • Buy, hold, or sell recommendations for over 4,300 stocks
  • Unlimited research reports on your favorite stocks
  • A custom stock screener
  • Upgrade/downgrade alerts
Stocks Under $10
Try it NOW

David Peltier, uncovers low dollar stocks with extraordinary upside potential that are flying under Wall Street's radar.

Product Features:
  • Model portfolio
  • Stocks trading below $10
  • Intraday trade alerts
  • Weekly roundups
Dividend Stock Advisor
Try it NOW

Jim Cramer's protege, David Peltier, identifies the best of breed dividend stocks that will pay a reliable AND significant income stream.

Product Features:
  • Diversified model portfolio of dividend stocks
  • Alerts when market news affect the portfolio
  • Bi-weekly updates with exact steps to take - BUY, HOLD, SELL
Real Money Pro
Try it NOW

All of Real Money, plus 15 more of Wall Street's sharpest minds delivering actionable trading ideas, a comprehensive look at the market, and fundamental and technical analysis.

Product Features:
  • Real Money + Doug Kass Plus 15 more Wall Street Pros
  • Intraday commentary & news
  • Ultra-actionable trading ideas
Options Profits
Try it NOW

Our options trading pros provide daily market commentary and over 100 monthly option trading ideas and strategies to help you become a well-seasoned trader.

Product Features:
  • 100+ monthly options trading ideas
  • Actionable options commentary & news
  • Real-time trading community
  • Options TV
To begin commenting right away, you can log in below using your Disqus, Facebook, Twitter, OpenID or Yahoo login credentials. Alternatively, you can post a comment as a "guest" just by entering an email address. Your use of the commenting tool is subject to multiple terms of service/use and privacy policies - see here for more details.
Submit an article to us!
DOW 17,122.01 +15.31 0.09%
S&P 500 2,000.12 +0.10 0.00%
NASDAQ 4,569.6210 -1.0160 -0.02%

Brokerage Partners

Rates from Bankrate.com

  • Mortgage
  • Credit Cards
  • Auto

Free Newsletters from TheStreet

My Subscriptions:

After the Bell

Before the Bell

Booyah! Newsletter

Midday Bell

TheStreet Top 10 Stories

Winners & Losers

Register for Newsletters
Top Rated Stocks Top Rated Funds Top Rated ETFs