This Day On The Street
Continue to site right-arrow
ADVERTISEMENT
This account is pending registration confirmation. Please click on the link within the confirmation email previously sent you to complete registration.
Need a new registration confirmation email? Click here
Stocks Under $10 with 50-100% upside potential - 14 days FREE!

Advocates In Muscular Dystrophy Community Press Congress For Fast Action On Muscle Disease Research And Treatment

TUCSON, Ariz., Feb. 14, 2013 /PRNewswire-USNewswire/ -- The Muscular Dystrophy Association, Parent Project Muscular Dystrophy and the Foundation to Eradicate Duchenne today called on the U.S. Senate and the U.S. House of Representatives to reauthorize the MD CARE Act of 2001, and to continue federal support for the accelerated pace of research and treatment development for muscular dystrophy. The nonprofits also are urging the public to contact their U.S. Senators and ask them to vote for reauthorization of The Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education (MD CARE) Amendments of 2013. The Senate introduced the bill last night (S. 315), and the House introduced the bill (H.R. 594) Feb. 8.

(Logo: http://photos.prnewswire.com/prnh/20130214/DC60923LOGO)

Since 2001, federal funding and coordination of muscular dystrophy research has dramatically enhanced discovery and development of potential treatments for the muscular dystrophies, including: Duchenne and Becker muscular dystrophies (DMD/BMD, or also known as DBMD); congenital muscular dystrophy (CMD); facioscapulohumeral muscular dystrophy (FSHD); limb-girdle muscular dystrophy (LGMD); and myotonic muscular dystrophy (MMD).

"Progress in muscle disease research since the MD CARE Act was passed has been extraordinary," said MDA President and Chief Executive Officer Steven M. Derks. "Sixty-seven clinical trials for drugs or therapies have been conducted since 2001, with 37 clinical trials currently under way. Additionally, new clinical care guidelines will be valuable tools to improve standards of care for those living with muscle diseases. We are counting on the unparalleled strength of our nationwide muscular dystrophy community to ensure that Congress understands the importance of this reauthorization. We must build on the success of the MD CARE Act and deliver effective treatments to those affected."

Senator Roger Wicker of Mississippi, author of the MD CARE Act of 2001, and Senator Amy Klobuchar of Minnesota, sponsor of the 2008 reauthorization, are lead Senate sponsors of the bill. In the House, Eliot Engel of New York and Dr. Michael Burgess of Texas are leading the effort for reauthorization of the MD CARE Act as they did in 2008.

"In 2001, as we celebrated the signing of the MD CARE Act, we could not imagine its impact," said Parent Project Muscular Dystrophy President and CEO Pat Furlong. "Over the years, we have seen scientific breakthroughs across the muscular dystrophies, which have led to the expansion and intensification of muscular dystrophy research, including the leveraging of significant non-federal sources of funding. Today, people with muscular dystrophy are living longer, more clinical trials are in progress, and the hope of treatments is palpable within our community."

As a result of the accelerated pace of discovery and development of therapeutic treatments, more young people with muscle disease are living longer and making the transition into adulthood.  This year's Amendment addresses that progress by requiring studies to develop optimal clinical care interventions for young adults with Duchenne and Becker muscular dystrophies (DMD/BMD).

"We are extremely grateful to members of Congress that have recognized the vital importance of this legislation to advance Duchenne muscular dystrophy research and produce real therapeutic approaches that are extending the lives of young men living with the devastating impact of Duchenne muscular dystrophy every day," said Joel Wood, president of the Foundation to Eradicate Duchenne. "This legislation and the research and therapeutics it produces are bringing us closer to our goal of finding a cure for this generation of Duchenne men."

The proposed legislation also mandates studies to demonstrate the cost effectiveness of providing independent living resources and support services for young adults with all forms of muscular dystrophy.

1 of 3

Select the service that is right for you!

COMPARE ALL SERVICES
Action Alerts PLUS
Try it NOW

Jim Cramer and Stephanie Link actively manage a real portfolio and reveal their money management tactics while giving advanced notice before every trade.

Product Features:
  • $2.5+ million portfolio
  • Large-cap and dividend focus
  • Intraday trade alerts from Cramer
  • Weekly roundups
TheStreet Quant Ratings
Try it NOW
Only $49.95/yr

Access the tool that DOMINATES the Russell 2000 and the S&P 500.

Product Features:
  • Buy, hold, or sell recommendations for over 4,300 stocks
  • Unlimited research reports on your favorite stocks
  • A custom stock screener
  • Upgrade/downgrade alerts
Stocks Under $10
Try it NOW

David Peltier, uncovers low dollar stocks with extraordinary upside potential that are flying under Wall Street's radar.

Product Features:
  • Model portfolio
  • Stocks trading below $10
  • Intraday trade alerts
  • Weekly roundups
Dividend Stock Advisor
Try it NOW

Jim Cramer's protege, David Peltier, identifies the best of breed dividend stocks that will pay a reliable AND significant income stream.

Product Features:
  • Diversified model portfolio of dividend stocks
  • Alerts when market news affect the portfolio
  • Bi-weekly updates with exact steps to take - BUY, HOLD, SELL
Real Money Pro
Try it NOW

All of Real Money, plus 15 more of Wall Street's sharpest minds delivering actionable trading ideas, a comprehensive look at the market, and fundamental and technical analysis.

Product Features:
  • Real Money + Doug Kass Plus 15 more Wall Street Pros
  • Intraday commentary & news
  • Ultra-actionable trading ideas
Options Profits
Try it NOW

Our options trading pros provide daily market commentary and over 100 monthly option trading ideas and strategies to help you become a well-seasoned trader.

Product Features:
  • 100+ monthly options trading ideas
  • Actionable options commentary & news
  • Real-time trading community
  • Options TV
To begin commenting right away, you can log in below using your Disqus, Facebook, Twitter, OpenID or Yahoo login credentials. Alternatively, you can post a comment as a "guest" just by entering an email address. Your use of the commenting tool is subject to multiple terms of service/use and privacy policies - see here for more details.
Submit an article to us!

Markets

DOW 17,356.87 +288.00 1.69%
S&P 500 2,012.89 +40.15 2.04%
NASDAQ 4,644.3120 +96.4780 2.12%

Brokerage Partners

Rates from Bankrate.com

  • Mortgage
  • Credit Cards
  • Auto

Free Newsletters from TheStreet

My Subscriptions:

After the Bell

Before the Bell

Booyah! Newsletter

Midday Bell

TheStreet Top 10 Stories

Winners & Losers

Register for Newsletters
Top Rated Stocks Top Rated Funds Top Rated ETFs