Global Genes Kicks Off #WearThatYouCare Events For World Rare Disease Day 2013
ALISO VIEJO, Calif., Feb. 7, 2013 /PRNewswire-USNewswire/ -- It's time to Care about Rare™. Global Genes Project ( globalgenes.org), a leading patient advocacy organization representing the rare and genetic disease community, is inviting industry partners, patients, caregivers, family and friends of the tens of millions of people who suffer from rare and genetic diseases to Wear That You Care™ during the month of February to support the sixth annual World Rare Disease Day on February 28, 2013.
World Rare Disease Day is a day of advocacy to call attention to rare conditions in the United States and across the globe. This day is celebrated on the last day of February each year. Over 300 leading partner organizations and foundations and thousands of advocates and supporters have already signed on to participate in the popular Wear That You Care™ and Blue Denim Genes Ribbon™ awareness campaign.
"The vast majority of rare and genetic diseases have small patient populations, and many organizations don't have ribbons to represent their specific rare or genetic disease," said Nicole Boice, president, Global Genes Project. "Our movement helps unify a fractured community of thousands of small diseases and millions of people who have not had a collective voice. Together we can gain the momentum and exposure needed to influence changes that can lead to lifesaving research and treatments for people with rare and genetic diseases."
The Wear That You Care™ campaign by Global Genes is a simple and unique awareness event. All across the world people participate in supporting the rare and genetic disease movement by wearing the Blue Denim Genes Ribbon™ and their favorite pair of jeans on World Rare Disease Day. Just as the pink ribbon symbolizes breast cancer awareness and the red dress symbolizes heart health, the Blue Denim Genes Ribbon™ has become the universal sign for rare and genetic disease awareness since being introduced in 2009.
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