Jan. 9, 2013
/PRNewswire/ -- To run a marathon is on many people's bucket list. To run one marathon a month for a year is a huge challenge that few runners ever accomplish. To run one marathon a month, blindfolded, borders on the impossible. In 2012,
did just this!
E. J. Scott
, diagnosed with Choroideremia (CHM) in 2003, has been selected to receive the Visionary Award at the fourth annual
Allstate Life Insurance SM
13.1 Marathon® and 5K on
. The 13.1 Marathon begins at
, and ends by the ocean in Playa Del Rey. The Allstate® Life Insurance 5K follows at
The Visionary Award Presented by US Road Sports was established to recognize an athlete with the Vision and foresight to change sport, in a positive way, through innovative thinking and constructive actions both within competition and in life.
Choroideremia is a disease that has robbed Scott of all but 15 percent of his eyesight. It is a degenerative eye disease, which makes him very sensitive to light. Despite this, he completed a crusade to run one marathon a month in 2012 and raised more than
for the Choroideremia Research Foundation.
Scott, an actor and comedian now in his mid-30s, will run blindfolded in the Allstate® Life Insurance 5K on
along with his girlfriend
Deborah Ann Woll
, best known as
E. J. Scott
is a true visionary in his efforts to raise awareness of his eye disease, Choroideremia, and also in his fundraising work to combat this disease," said
, CEO and Managing Partner of the event organizer, US Road Sports.
Scott created the idea of running 12 marathons in 12 months in 12 states, running all of them blindfolded, to raise research money for Choroideremia. "My biggest fear about going blind is that I won't get to see my-yet-to-be-born or conceived children grow up and be involved with them visually," he said. "I have two small nephews and a brother that all have the disease and that's pretty frightening. This is why I run." Scott's sister was diagnosed as a CHM carrier and her oldest son, Liam, tested positive in 2005; Aidan, the youngest son, has also tested positive.